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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is fair to say that we probably know the least about longer term recovery. This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care. Also, much of the research that has been done has tended to use questionnaires which, although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice. We hope you find it useful.

 

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Web Link: Age Scotland (advice for carers)

This link will take you to the Age Scotland website.They provide a fantastic range of information and advice on many different issues such as housing, legal issues, saving money on your energy bills, eating well and common health conditions. Much of this is available in free leaflets that you can download or print off. Part of their services include an Information and Advice team. Their staff and volunteers specialise in answering enquiries from older people, their carers and...

Web Link: A-Z of health conditions

Many people who come into Intensive Care have pre-existing health conditions. Part of your recovery will likely include understanding and dealing with those conditions too. This link will take you to an NHS page with information on 100's of conditions, symptoms and treatments. It's not exhaustive, but we hope you find it helpful.

External Video: Bob describes his long term recovery

In this short video, Bob (a former Intensive Care patient) talks about his recovery over the months and years since his accident.

Web Link: Going back to work

This link will take you to the website of Healthy Working Lives.Although this page is intended for employers, it will give you some insight into your rights and your employer's responsibilities if you are thinking about going back to work or retiring early.

External Video: How do I increase the amount of activity I'm doing

This short clip will explain how you can start building up your activity and exercises levels. For some people returning to normal activities may take a few weeks while others it can take months and even over a year. The important thing is to listen to your body and go at the right pace for you. This clip should help you understand how to do this. If you're struggling to increase you activity or exercise speak with a Physiotherapist who will be able to give you some guidance.

Web Link: ICU Support Groups

Some people find it helpful to meet and talk with others who have been through similar experiences to their own. This is the weblink to ICUsteps website with details of patient and family support groups UK wide including Edinburgh and Dundee It will tell you more about the groups, who they are, what they do and when and where the meetings are held.

External Video: Managing your physical symptoms using pacing

This short clip will explain what 'pacing' is and how it can be used to manage some of your physical symptoms including breathlessness, fatigue and pain.

Web Link: NHS 24 Self help advice

This link will take you to NHS 24's self help guide on common health issues. The information and advice given is very general in nature, but you may find some of it helpful.

Web Link: NHS Approved App: Beating Panic

Do you sometimes experience panic attacks or anxiety? Both can be very common after a stay in intensive care. Beat Panic is designed to guide people through a panic attack or raised anxiety using their phone. The Beat Panic app uses a series of soothing coloured flashcards with messages designed to help you overcome a panic attack in a calm, gentle manner. Follow this link to learn more about how Beat Panic can help you. This app is NHS approved and is available through the...

Web Link: NHS Approved App: iPrescribe Exercise

Exercise helps both body and mind - particulary after a stay in intensive care.  The iPrescribe Exercise app creates a 12-week exercise plan based on health information entered by the user. It then sets the duration and intensity of the exercise based on this information. This helps improve your overall health, but can also be used to manage a number of long-term health conditions and help those at risk of developing them become more active.  The iPrescribe Exercise app is free...