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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is fair to say that we probably know the least about longer term recovery. This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care. Also, much of the research that has been done has tended to use questionnaires which, although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice. We hope you find it useful.

 

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External Video: Pacing for Breathlessness

This short clip will explain how a technique known as "pacing" may help feelings of breathlessness. You might also find the booklets on bodily positions to help breathlessness, breathing control and how to conserve your energy helpful in dealing with breathlessness.

External Video: Pacing for Fatigue

This short clip will explain how the technique of pacing may be used to manage any fatigue that you may be experiencing.

External Video: Pacing for Pain

This short clip will explain how pacing your activities may help to manage any pain that you are experiencing.

Web Link: Self-management help

This link will take you a website with Self-amanagement advice. Self management is about people living with long term conditions being in ‘the driving seat’. It supports people to live their lives better, on their terms.